June 4 - Fingers crossed with some great news

The bone marrow went well today to check to see if there is any residual cancer.  Plus, had to have platelet and red cell transfusion along with the biopsy.

The GREAT NEWS is that if everything goes well over the next 24 hours, I will be discharged from the IPOP transplant unit tomorrow!  Effectively discharged from the intensive program, AND, we will pack up and COME HOME!

They'll be lots of trips back and forth in follow-up but being back home...beyond words!

For those of you who've sent some very nice cards to the Baltimore address, you may use our home address if you want to:  127 Cabbage White Drive, Lake Frederick, VA  22630

I should be back in the office (initially limited hours) in the next few weeks and I look forward to seeing all of you!

It is nothing short of miraculous that this process has moved along so well recently.  I have you all to thank for your prayers, help and concerns for this.  

But, to GOD I give the glory.

Comments

  1. UnknownJune 4, 2018 at 2:24 PM

    PRAISE GOD FOR ALL HIS GRACIOUS MERCIES!!

    ReplyDelete
  2. Paul and SallyJune 4, 2018 at 4:42 PM

    Hallelujah! Can't wait to see you both! Continued prayers and love come your way.

    ReplyDelete
  3. Cheryl Tony and JDJune 4, 2018 at 7:36 PM

    GOD bless you and Jan. Love and light to all.

    ReplyDelete
  4. GingJune 6, 2018 at 9:20 AM

    Fantastic news! Can't wait for you guys to be home!

    ReplyDelete

Post a Comment

Popular posts from this blog

January 28 - Just in - I am going to receive a bone marrow transplant

Image
In the last 2 weeks, we received much amazing news.  In quick succession, we found out: I am going to receive a bone marrow transplant (actually, it is a stem cell transplant) at Johns Hopkins on March 9. All four of our children were matches for the transplant. The one child I didn't expect to be the donor is..... ?  [Listen to the audioblog post below for who it is!] As previously mentioned, the IDHIFA oral chemotherpay worked miraculously on my MDS and the blast count in my bone marrow dropped below the 5% cut-off for consideration of a bone marrow (or stem cell) transplant. As exciting as this is, the reality of the details of getting the bone marrow transplant have set in: Getting all of the extensive testing (CT scans, Echocardiogram, EKG, PFT's, lab, repeat Bone Marrow Biopsy 😓etc) needs to be done prior to the transplant. Finding a place to live for the 2+ months Jan and I will be in Baltimore (so as to get treatments and checkups at Johns Hopkins on
Read more

February 16 - New Information

This past Monday I had a difficult bone marrow biopsy lasting 1 1/2 hours.  Jan and I have been waiting for the results and we got the results late yesterday afternoon My bone marrow revealed that... I AM IN REMISSION! This means that the biopsy found no evidence of cancer in the biopsy and the chimer test shows that there is only donor cells (and none of mine)! Praise and honor to GOD   (and the staff at Johns Hopkins).. If all goes well,  I should be discharged early next week and return home to finish recovery at home and then return to the office on a limited basis (at least at first).  Still a long way to go.... So... YOUR PRAYERS and support have worked.  Jan and my family is greatly relieved and also grateful. Bless you all!
Read more

May 29 - Out of the hospital

It is good to be out of hospital after being in 47 days!  Out of the hospital now 7 days and good to be back with my wife and not having to 'survive' each day in the hospital.  Now, each day I go to IPOP  (the unit called "Inpatient/outpatient").  Lab drawn and any needs addressed from tranfusions to getting IV electrolytes, etc.  Progressing each day.  I am very deconditioned.  I am regaining strength slowly each day.  Currently getting over Graft vs Host disease.  A frequent complication where the donor cell are still 'attacking me'.  It is fine line since there should some GvH disease which helps the donor's cells 'get rid' of my cancerous cells.  Taking high dose steroids but that's the price to pay to get over the GvH disease. Engraftment has occurred!  Effectively, this means that Erika's stem cells have established.  So...Erika's stem cells are currently producing the white blood cells.  The other cell lines (red blood cells
Read more