April 11 to May 18
Sorry about the GAP in updates (I am using some of Jan's FB posts as information since many days I was either too out of it or just too sick) -
My last post was t-zero. Jan is typing for me. The transplant occurred while I was still being treated for streptococcal pneumonia. Erika produced more than plenty of stem cells for transplant. Here is the following list of evens that occurred:
Appreciate all of the prayers, messages, support, cards, and love from our family, friends, patients, churches and neighbors.Again, we are so grateful to our wonderful staff @ skyline family practice, our visiting docs from our research network, who have come to care for our patients. Special thanks to Dr. Tom Patteson, Dr. Daniel Mendez , and Dr. Tommy Ball for their additional help with our patients.Special shout out to our neighbors for all of their help and friend ,Nita Robinson.
Surprised to have received a special honor from the Warren County Chamber of Commerce for the
Education Contributor award which was received by our all four of our children , representing me while we were @ Johns Hopkins.
n
I am @ day 38 post transplant and look forward to getting home soon enough.
My last post was t-zero. Jan is typing for me. The transplant occurred while I was still being treated for streptococcal pneumonia. Erika produced more than plenty of stem cells for transplant. Here is the following list of evens that occurred:
- 103-104 fevers
- 2 days of high dose cytoxan (chemo), which wiped out fever
- cytokine syndrone occurred which led to fluid overload that caused atrial vibrilation with rapid ventricular rate, acute kidney failure , which caused emergency dialysis. head to toe bright red rash
- clearing of rash with peeling
- engraftment began with yet more bouts of fevers, rash, and edema
- had inflamation inside and outside.
- abdomen swelled so badly , couldn't breathe. began coughing up blood.
- had to be intubated and put on a ventilator for 3 days
- many tests and procedures
- lungs were ok but had small bowel obstruction from barium from a test that was done
- severe bleeding esophagitis
- whole lower tract of gi system was inflamed
- multiple transfusions of red cells and platelets
- blood counts on the rise up in the right direction
- then came graft vs host response and again rash head to toe and fevers. fatigue and malase.
- wt lost and decondioning
- blood pressure was bottoming out
- IV fluids and TPN (nutritionial IV feeding)
- improving and walked 8 laps around nurse's station today
Appreciate all of the prayers, messages, support, cards, and love from our family, friends, patients, churches and neighbors.Again, we are so grateful to our wonderful staff @ skyline family practice, our visiting docs from our research network, who have come to care for our patients. Special thanks to Dr. Tom Patteson, Dr. Daniel Mendez , and Dr. Tommy Ball for their additional help with our patients.Special shout out to our neighbors for all of their help and friend ,Nita Robinson.
Surprised to have received a special honor from the Warren County Chamber of Commerce for the
Education Contributor award which was received by our all four of our children , representing me while we were @ Johns Hopkins.
n
I am @ day 38 post transplant and look forward to getting home soon enough.
Hello there Dr. Bradd. So glad to see you back posting, even though Jan is typing. Mom and I have been keeping you in our prayers and will continue to do so. Positive healing energy heading your way. Love and Hugs.
ReplyDeleteContinued prayers. Have been following you through Jan's Facebook posts. So very sorry this has Bryn such a long and tortuous road for all of you. May God continue to hold you in the hollow of His hand.
ReplyDeleteWe pray for you every day. Thanks for the updates.
ReplyDeleteBeen praying for you and your family every day. Keep your hope, faith and trust in the Lord to bring you all through this. So much love being sent your way.
ReplyDeleteYou are in our prayers. Thinking of you a lot. What a painful, arduous, brave journey you are on. Blessings for a complete recovery. Godspeed. Cathi and Woody
ReplyDeleteHi my name is Lynn Martinez. I too have been diagnosed with myelodysplastic syndrome. It's caused by previous radiation treatments 10 years ago and chemo treatments 2 years ago. I will have to go to Seattle to get this done and I live in a little town very close to Boise in Caldwell Idaho. My sister set up a GoFundMe page for donations for the special housing that I will have to stay at while I'm there. The cost is very high and I still have a house payment to make also. Any hints that you can offer to help us reach our goal would be so greatly appreciated. I wish you a speedy recovery and a long long life. God bless you and your family
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