January 28 - Just in - I am going to receive a bone marrow transplant
In the last 2 weeks, we received much amazing news. In quick succession, we found out: I am going to receive a bone marrow transplant (actually, it is a stem cell transplant) at Johns Hopkins on March 9. All four of our children were matches for the transplant. The one child I didn't expect to be the donor is..... ? [Listen to the audioblog post below for who it is!] As previously mentioned, the IDHIFA oral chemotherpay worked miraculously on my MDS and the blast count in my bone marrow dropped below the 5% cut-off for consideration of a bone marrow (or stem cell) transplant. As exciting as this is, the reality of the details of getting the bone marrow transplant have set in: Getting all of the extensive testing (CT scans, Echocardiogram, EKG, PFT's, lab, repeat Bone Marrow Biopsy 😓etc) needs to be done prior to the transplant. Finding a place to live for the 2+ months Jan and I will be in Baltimore (so as to get treatments and checkups at Johns Hopkins o...
I loved hearing your voice. I will be praying for you & your family. Take care Doc.
ReplyDeleteLove the voice update...... it's the next best thing if we can't actually be with you to talk. Love you and Jan so much. Keep on keeping on with faith, hope and belief your on the right path. Sally & Paul
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