January 28 - Just in - I am going to receive a bone marrow transplant
In the last 2 weeks, we received much amazing news. In quick succession, we found out: I am going to receive a bone marrow transplant (actually, it is a stem cell transplant) at Johns Hopkins on March 9. All four of our children were matches for the transplant. The one child I didn't expect to be the donor is..... ? [Listen to the audioblog post below for who it is!] As previously mentioned, the IDHIFA oral chemotherpay worked miraculously on my MDS and the blast count in my bone marrow dropped below the 5% cut-off for consideration of a bone marrow (or stem cell) transplant. As exciting as this is, the reality of the details of getting the bone marrow transplant have set in: Getting all of the extensive testing (CT scans, Echocardiogram, EKG, PFT's, lab, repeat Bone Marrow Biopsy 😓etc) needs to be done prior to the transplant. Finding a place to live for the 2+ months Jan and I will be in Baltimore (so as to get treatments and checkups at Johns Hopkins o...